Logan’s Link List 🔗
Disability and chronic illness
Swipe/click to the right to see infographics and educational images —>
🦓 Ehlers-Danlos syndrome (EDS)
The co-existence of EDS & POTS: A systematic review of the literature
Phenotypic Clusters and Multimorbidity in hEDS
NEW
The Relationship between Autism and EDS/HSD
Patients with EDS Experience Reduced Effectiveness of Lidocaine Local Anesthetic: A Randomized Cross-Over Clinical Trial - PMC
Defining “Neuro-EDS”: A Neuro-Predominant Phenotype in hEDS/HSD and Related Heritable Connective Tissue Disorders
Mitochondrial Dysfunction and Its Potential Molecular Interplay in hEDS: A Scoping Review Bridging Cellular Energetics and Genetic Pathways
Surgical screening protocol for CCI secondary to EDS and other connective tissue disorders: analysis of a 347 patient case series - PMC
Prevalence of Intracranial and Cervical Artery Abnormalities in Patients with hEDS & HSD Presenting to an Academic Headache Clinic
Proteomic discoveries in hEDS reveal insights into disease pathophysiology
Lower androgen sulfate metabolites in women with hEDS may be associated with changed metabolism and disposition
2-Chloroprocaine vs. Lidocaine in a Patient With hEDS and a History of Local Anesthetic Resistance: A Case Report
EDS: prevalence and outcomes in gender affirming surgery - a single institution experience
Assessing the Risk of Gynecologic and Obstetric Diagnoses in Patients with EDS
Urogenital Findings in EDS Correlate with Underlying Tissue Laxity Mechanisms
Comorbid Conditions of Ehlers–Danlos Syndromes and Vulvodynia: A Latent Class Analysis
Low Dose IV ketamine offers hope for pain in EDS
Bi-allelic variants in OLA1 cause a neurodevelopmental disorder with joint hypermobility
Study connecting CRPS, hEDS, and MCAS; the role of unconventional therapies
To what extent do the muscles and tendons influence metabolic cost and exercise tolerance in hEDS and HSD?
Special Order Splints | Silver Ring Splint
🧂 Postural orthostatic tachycardia syndrome (POTS)
POTS JAMA review
Long-term outcomes in patients with POTS with an average follow-up of over 20 years
An Overview of Vascular Compression Syndromes and Associations with Autonomic Dysfunction: A Review - PMC
Postural Orthostatic Tachycardia Syndrome: A State-of-the-Art Review
The co-existence of EDS & POTS: A systematic review of the literature
POTS Is Associated With Elevated G‐Protein Coupled Receptor Autoantibodies
Ivabradine (Corlanor) for POTS treatment study
Postural Orthostatic Tachycardia Syndrome, Menopause and Hormone Replacement Therapy: Clinical Decisions in Times of Uncertainty
POTS: An invisible illness YouTube video
Dysphagia Symptoms in Patients with Postural Orthostatic Tachycardia Syndrome (POTS): A Qualitative Study
Hyperadrenergic POTS: Clinical Biomarkers and Response to Guanfacine
Hives in autonomic disorders: a cutaneous marker of a distinct symptom phenotype - PMC
POTS in post-COVID-19 long-hauler patients is associated with platelet storage pool deficiency - PMC
Distress in postural orthostatic tachycardia syndrome (POTS) is largely driven by ineffective healthcare, not patients' attitudes
🌾 Mast Cell Activation Syndrome (MCAS)
MCAS Primary Care Guide
Progress in MCAS: the global consensus-2 diagnostic criteria at six years
Brief guide to MCAS
Cardiovascular manifestations in mast cell activation disease: key insights for cardiologists and angiologists
Hives in autonomic disorders: a cutaneous marker of a distinct symptom phenotype - PMC
🧬 Combination of comorbidities
Comprehensive review of ME/CFS
Imaging and physiology across the high–low cerebrospinal fluid pressure spectrum: Navigating diagnostic uncertainty in headache practice
Lower androgen sulfate metabolites in women with hEDS may be associated with changed metabolism and disposition
The co-existence of EDS & POTS: A systematic review of the literature
Laxity Comes with Consequences: Connective Tissue Disorders and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
NEW
(Nasal spray reverses age-related brain inflammation in preclinical study) Intranasal Human NSC-Derived EVs Therapy Can Restrain Inflammatory Microglial Transcriptome, and NLRP3 and cGAS-STING Signalling, in Aged Hippocampus
An Overview of Vascular Compression Syndromes and Associations with Autonomic Dysfunction: A Review - PMC
The Relationship between Autism and EDS/HSD
Mitochondrial Dysfunction and Its Potential Molecular Interplay in hEDS: A Scoping Review Bridging Cellular Energetics and Genetic Pathways
Comorbid Conditions of Ehlers–Danlos Syndromes and Vulvodynia: A Latent Class Analysis
Intranasal Anti-CD3 Antibody Treatment Attenuates Post–COVID Neuroinflammation and Enhances Hippocampal Neurogenesis and Cognitive Function in Mice
Likely neurodivergence and variant connective tissue in patients with chronic pain/chronic fatigue: a case-control study
Metabolic adaptation and fragility in healthy 3D in vitro skeletal muscle tissues exposed to chronic fatigue syndrome and Long COVID-19 sera
Prevalence of Intracranial and Cervical Artery Abnormalities in Patients with hEDS & HSD Presenting to an Academic Headache Clinic
The effect of high-dose long-term therapy of intravenous immunoglobulins in autoimmune autonomic and sensory small fiber neuropathy: a retrospective open-label controlled study - Scientific Reports
How to understand the overlap of long COVID, chronic fatigue syndrome/myalgic encephalomyelitis, fibromyalgia and irritable bowel syndromes
Assessing the Risk of Gynecologic and Obstetric Diagnoses in Patients with EDS
Study connecting CRPS, hEDS, and MCAS; the role of unconventional therapies
Urogenital Findings in EDS Correlate with Underlying Tissue Laxity Mechanisms
Diagnosis and Management of Myalgic Encephalomyelitis/CFS
Hives in autonomic disorders: a cutaneous marker of a distinct symptom phenotype - PMC
LOW VASOPRESSIN IN ME/CFS
Comorbidity analysis and clustering of endometriosis patients using electronic health records
Systemic increase of AMPA receptors associated with cognitive impairment of long COVID
Towards an understanding of physical activity-induced post-exertional malaise: Insights into microvascular alterations and immunometabolic interactions in post-COVID condition and ME/CFS - PMC
RoADPain Study — Nuffield Department of Women's & Reproductive Health
👍🏻 Helpful
Project Medical Reform Association (PMRA)
Cripple.info, resource collection related to disability
Disability Rights Maryland
Special Order Splints | Silver Ring Splint
Medical alert cards - Online shop for The Ehlers-Danlos Support UK
Inclusion Works - Disability:IN, inclusion consultations for corporations
Hi! I hope these links can be interesting or helpful to you! I update and add to it regularly so keep an eye out for new links! Follow me on Instagram for more about these conditions and my personal experience living with them, linked below ☺️ this is free for me to use through my Instagram account and I don't get paid for engagement.
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"Accessibility is being able to get in the building. Diversity is being invited to the table. Inclusion is having a voice at the table. Belonging is having your voice heard at the table.” - Liz Fosslien